Medical Complexity
Medical complexity: a path for families
For children and adults who need many specialists, home nursing, or medical technology, and the families who care for them. Five stages most people pass through, with what to do now and what to search for. Everyone's path is different: start wherever you are.
Search medical complexity services How to get services in your state
Leaving the hospital
What to do now
- Ask for a discharge plan in writing, with home nursing hours and equipment orders.
- Ask who coordinates care after you go home.
- Learn every device before you leave.
Building the care team
What to do now
- A complex care clinic or medical home keeps specialists working together.
- Keep a one-page summary of diagnoses, medicines, and devices.
- Ask for a care coordinator.
Look for
Pick your state on the search page.
Care at home
What to do now
- Ask your state about Medicaid for children with significant disabilities, and about waivers. Your state page shows the options.
- Medical day care can give parents time to work.
- Respite helps the whole family.
School and growing up
What to do now
- An IEPIndividualized Education Program: a written plan for a child's special education services at school. can include a health plan and a school nurse.
- Start planning the move to adult doctors around age 14.
- Communication devices can go to school and home.
Support and the future
What to do now
- Parent support groups connect you with families who understand.
- Palliative care is extra support at any stage, not only at the end.
- Siblings need support too.
This is general information, not medical or legal advice. In crisis? Call or text 988. If someone is in danger now, call 911.