Neurological and Chronic Health
Neurological and chronic health: a path through change
For people with brain injury, stroke, epilepsy, MS, ALS, Parkinson's, dementia, or a chronic illness, and their families. Five stages most people pass through, with what to do now and what to search for. Everyone's path is different: start wherever you are.
Search neurological and chronic health services How to get services in your state
A diagnosis
What to do now
- Ask what to expect over the next year and what to watch for.
- Ask for a referral to a specialist.
- Condition groups offer free guides and nurse lines.
Treatment and rehab
What to do now
- Rehab therapies help keep strength, speech, and daily skills.
- Specialty clinics bring several doctors together.
- Ask about clinical trials.
Help with daily life
What to do now
- Home care and adult day programs can help you stay at home.
- Caregivers need breaks too. Ask about respite.
- Support groups help the whole family.
Money and benefits
What to do now
- If you cannot work, ask about SSDISocial Security Disability Insurance: monthly payments for people with disabilities who worked and paid Social Security taxes. or SSISupplemental Security Income: monthly payments from Social Security for people with disabilities who have low income and few savings..
- Medicaid waivers can pay for care at home. Many have a waiting list, so apply early.
- Your state page shows how to apply.
Planning ahead
What to do now
- Write down your wishes: advance directives and a health care proxy.
- Memory care and hospice are options to learn about early.
- A legal aid office can help with paperwork.
This is general information, not medical or legal advice. In crisis? Call or text 988. If someone is in danger now, call 911.